wook77: (christian - thinking)
[personal profile] wook77
On Thursday and Friday nights this past week, I volunteered at an emergency shelter. Tucson declared a state of emergency due to the cold and the fact that 14k people were without heat. Unfortunately, the shelter didn't get a lot of usage but, still, awesome idea.

During my time volunteering, I met some amazing people. There was the guy that gave up his condo in NYC to drive around in a beat-up Jeep and camp out in various places around the US. He was appalled that, whenever he asked anyone where the library was, they had no idea. It wasn't just Tucson, it was Seattle and Des Moines and Chicago and Pittsburgh and Philadelphia. We talked about books and writing for hours.

There was the guy that came in that had a bit of gas going into his house but he simply couldn't afford to heat his house. He chatted with me as he walked his cat around on a leash. We had brilliant conversations about his time in the military and how he felt a bit loss because he'd never found a job that fit quite like the military. He had problems relating to people and never once made eye contact with me. He told me that I was the first person he'd talked to for more than a few minutes, at least in three years. Three years of not having anything more than a cursory conversation with someone.

There was the homeless man who had a service chihuahua. The dog was there for seizures and for mental health issues. It was freezing so the man came in from the cold only for his dog. If it hadn't been for the dog, he would've stayed right outside, he proudly told me. He was very withdrawn and only responded when asked about his dog.

But the one set of people I met that has me wrenched up in a navel-gazing sort of way was the 13 year old girl I met. (I'll call her "A") She came in with her father and they had two cats that walked on a leash. One was fixed and the other wasn't. It wasn't until they'd been at the shelter for three hours that she gave an interview to one of the reporters that showed up. When the reporter asked her how long they'd been without gas, she looked at him, blinked and said that there was plenty of gas in their car. It's just it was nice to sleep in a real bed.

A and her father (always father, never dad or daddy. always father) had been living in their car for two months. This time. They'd had a place for a few months before that but before that, they'd been living in the car. In the past year, she'd been living in the car over 6 months. A car.

Both her and her father had very limited social skills. The first night, they barely talked to anyone. They were polite but withdrawn. A was proud to admit that she'd started her first college class (13 and going to college and homeless). Other than that, they didn't speak. The second night, I greeted them by name, ushered them into the shelter with a smile and found myself talking to both her and her dad. It was hard to navigate the conversation, to keep it away from things they found intrusive (questions like, "are you warm enough here" and asked because the first night, the boiler malfunctioned and the place's temperature sank to 55, was far too personal). I talked to them about their animals and the importance of spaying and neutering. The father mentioned that one of my co-workers had mentioned a free neuter but he wasn't interested. We talked about health risks and ensuring that the animals kept all their shots up to date.

I took a moment to introduce everyone to my replacement, ensuring that my replacement volunteer knew the minefield and could make better decisions than I had the night before, and went on my way.

This morning, I got a call from the co-worker (who is a high mucketymuck at work and not just a grunt like me) that the father had agreed to neuter his cat and that it was all "your fault". I've never been so grateful to hear the words "your fault".

But, really, I wonder about the impact I had. Anyone who has been on my flist for awhile can tell you that, every year, for my birthday and for Christmas, I ask people to give to the needy, to look through their closets and downsize their stuff. I ask people to donate to local charities and take the time to volunteer if they can. I'm really good at the lip service to these causes.

However, I've learned that I still suffer from the "not in my backyard" syndrome. Sure, there's a problem with homeless families but, really, not in Tucson. We're a very generous small city. And, really, if it's a homeless family, it's female-led. That's why it's important to have safe places for families to go. Except that most homeless shelters don't really plan for male-led homeless families so where did this father/daughter combo have to go that wouldn't separate them?

The other part that really got me was that each person that I spoke to told me about how awesome the libraries are, how important they are for a safe haven and the opportunities they presented. To A, they meant a place where she could work on her college and high school classes. To the traveler, they meant a place where he can get a book, brush up on his skills and take a moment to rest somewhere warm/cool. To another gentleman, they meant a place where he could just be. It was rare that I heard about the importance of the books but, instead, they talked about the librarians that helped them without judgment and the rare one that did judge. They talked about how it was a shame that libraries weren't treated with respect anymore. They talked about how people abuse the library, stealing books that others want to enjoy.

And I sat there, knowing full well that I owe twenty-five dollars in fines to the library that I can easily repay but I've been too fucking lazy to do and I was so ashamed at that moment (and now). So, Monday, I'll be calling the main branch and having my credit card charged for my fines. I'll be making a donation, too. I'm going to work harder at my classes.

I'm reassessing what I've been doing and how I look at the world. It's all navel gazing but, really, sometimes you need something to rock you out of complacency and I have to thank A for that.

Sorry this is so long and not under a cut but it feels wrong to hide their stories under a cut. These people are hidden away so much by society already that I feel ashamed for trying to hide them again. So, no cut and you can flay me for it, if you'd like.

Date: 2011-02-06 08:27 am (UTC)
ext_77335: (Autknit)
From: [identity profile] iamshadow.livejournal.com
You make me wonder how many people who are homeless are on the spectrum. I know there are high correlations between mental illness and homelessness, but so much of ASD is simply down to never quite fitting in with society. I know I've worked my arse off at jobs, put in 100% more effort than any other cashier, taken pride in my work... and still ended up shafted because I'm that bit odd, not interested in staff politics, and so on and so forth.

I ended up on disability because I couldn't take the constant pressure of having to apply for jobs and take bloody 'job readiness training courses' where they'd tell me that everything that I did was 'wrong'. Everything, that is, that was down to me being autistic. A 'passing' autistic, but nevertheless someone who wouldn't get hired because they didn't make eye contact, because they couldn't stay on topic, because they fidgeted, because they couldn't read body language, because everything about them projected 'dishonesty' or some fucking NT pop-psychology bullshit.

I can totally relate to that ex-military guy. In the armed forces, you're trained to act and think in a completely black and white way, whoever you are. The lines are clear and comforting. In the real world, there's so much grey. If you've got a communication disorder, it's a lonely, lonely place.

Date: 2011-02-06 08:39 am (UTC)
From: [identity profile] wook77.livejournal.com
I think that that's what got to me so much - the loneliness of their world. I'm so used to just nattering on at everyone that it's hard for me to shuffle off that comfortable position and go beyond to where a simple question might possibly be intrusive. IDK that I could deal with not making eye contact though I realize that there are entire cultures that view that as rude and there are those that cannot do it.

I'm obviously really shaken by this experience because it's not only opened up my eyes so much but made me realize that there's more I could be doing and just, well, more.

I appreciate your comments and, tbh, they really add to what I'm taking away from this. I did wonder about the eye contact thing, didn't know what to make of it but your experience explains it to me (I know that sounds condescending and I really do not mean it that way, I absolutely promise). I definitely know that in the future, I won't attempt to force eye contact. I'm also going to pause before thinking that someone is "just being rude" when they won't make eye contact or fidget a lot. Thank you for opening my eyes even further.

Date: 2011-02-06 11:59 am (UTC)
ext_77335: (Autknit)
From: [identity profile] iamshadow.livejournal.com
No problem - that's why I commented.

I got a diagnosis in my mid-twenties. Because of increased recognition of high-functioning ASD and learning disorders, kids today get recognised in day care or primary school. However, people of my generation or older don't get a DX unless we recognise it in ourselves and seek it. Asperger's research didn't get translated into English until after the fall of the Berlin wall. By that time, I was in late primary school, headed for high school. By the time Asperger Syndrome and high-functioning autism were widely recognised in the English speaking world, I was almost an adult. There are millions of people out there who only find out about their own ASD when they have a child and that child gets diagnosed - like Liane Holliday Willey, and Valerie Paradiž.

Eye contact is a big thing that people have trouble with, though some autists go the other way - making eye contact that is far too intense. I have had patches of this myself in the past. Like you said, though, eye contact might be a cultural thing - I know we got taught in my childcare course that some cultures find 'polite' eye contact by Western standards to be rude by theirs.

Other things that might be indicators that you are talking to someone on the spectrum are modulation problems - speaking in a monotone or with an unusual prosody (my brother pauses at odd points), too loudly, too quietly,or with an unconscious escalating volume.

Also, a one track mind. You meet someone who only wants to talk about trains, science fiction or baseball averages (all terminal clichés, but for a reason) and doesn't take any subtle cues for a topic change, they're likely autistic.

Inappropriate affect is another. They may talk about something incredibly sad or upsetting, but smile or laugh throughout. Or, they may laugh at another person's pain. A classic example is in Jon Elder Robison's book. As a child, he was punished for responding with ecstatic smiling on hearing another child had died. He was smiling out of relief because it wasn't him who had been killed, a perfectly understandable response, but not considered acceptable.

Also, there's a pretty big crossover with things like OCD and Tourette's. It's very common for people on the spectrum to have ritualistic behaviour, grimaces or tics. These tend to be involuntary (or near enough to) or even completely unconscious. It's pretty closely related to stimming behaviours (self stimulating) like rocking, foot tapping, hand flapping, etc. Pretty much all autists have some form of self-stimulation. It's a way of regulating anxiety and overload.

Date: 2011-02-06 02:22 pm (UTC)
From: [identity profile] wendy.livejournal.com
Working in the downtown library here taught me so much about the homeless population, and my own biases. It was both shocking and enlightening and it changed me forever.

I'm proud of you for volunteering Wook, you are awesome.

Date: 2011-02-06 04:19 pm (UTC)
From: [identity profile] sugareey.livejournal.com
Wow. It really doesn't give you a different insight on things, right? I'm glad you volunteered, and thanks for sharing your experience with us!

Date: 2011-02-06 06:42 pm (UTC)
From: [identity profile] syredronning.livejournal.com
A touching experience. I wouldn't have time or energy right now to volunteer like this, but it's definitely something to consider in the future.

(Also - when I was quite stressed out lately about my first-world job problem, I met a friend who has gone through two cancer treatments in her life already, can't work anymore, doesn't know what to do right now - she's married and her husband is awesomely supportive but it's put a big strain on them, of course. Stories like this one really shifts your world view, IMO.)

Date: 2011-02-06 07:32 pm (UTC)
From: [identity profile] enchanted-jae.livejournal.com
Your post should be published somewhere. We are all guilty, to some degree or another, of looking through homeless and labeling them as such, and we forget that they're people. They have their own issues and personalities and hopes and dreams, and it's important to remember that.

Date: 2011-02-06 07:33 pm (UTC)

Date: 2011-02-07 02:08 pm (UTC)

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